Most people who know me would use the word determined in their description of me. I don’t really feel comfortable with the word, as sometimes I don’t bother to try, I don’t know what it is I’m supposed to be determined about. I see myself as giving energy to those things I care about.
In all my life, I gave a lot of energy to motherhood. At times It was tough with financial worries, it was hard to part company from my husband but he bullied me, dominated me, and neglected our child, so I had no choice.
I gave a lot of energy to recovering after my brain surgeries, but I didn’t really realise it. I’m not passive very often, but I wanted to do sport again, I wanted to carry on with my life as it was before. I never dreamt I would have to adapt to a different way of living.
I’ve travelled a great deal, it’s never occurred to me not to. I’ve studied a great deal because I love learning.
This diagnosis with my lungs knocked me over and I laid down for a very long time. There seemed little that could be done. I was caring for my Dad, and I became more and more breathless. Paramedics became the norm.
Now I have been prescribed a new medicine, and I haven’t had any tightness in my lungs. I feel like I once did although I have to be aware that I tire easily
Writer and psychologist. My health, a journey with two life shortening diseases 
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