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I have had a shock…

I decided to try to find out how many people have the disease I have. It is not known but less than 1:2000 000.

Thrown up in the results was a book, My Life With Dystonia by Cheri Tannenbaum. Like me she is Ashkenazi Jew. Her dystonia has made her body very stiff, immobile and unable to speak although there has been improvement, I don’t know if this was with the help of drugs. Most importantly, she never had OPEN BRAIN SURGERY.

So the atrophy on my left side might have been totally unnecessary. All the pain it causes me….

I can’t dwell on this. It does me no good. But I am shocked to my core.

By Chrisssie Morris Brady

I've read poetry since I was nine and have written creatively since I was fourteen (probably long before that). After writing book reviews and social comment, I decided I wanted to write poetry. I have no formal training, but I surround myself with poets and their writing. I am honing my craft.
I have two published collections which I don't feel good about, but have been published by madswirl.com and other publications. I live on the south coast of England with my daughter. I am seriously ill.

3 replies on “I have had a shock…”

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