Creative-Commons As (unqualified) Acts of Love By James Diaz

Left Out In The Cold: A Journal

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In the first chapter of Ranceire’s Sentiments, Davide Panagia outlines Partager/sharing and the subtle ways in which Ranciere approaches politics through a sentimental reading and writing. Sentimental, often used as a disparaging comment, as in one who is too sentimental, here comes to define a way of reading and sensing that has less to do with any natural drawn lines of distinction, origin, or absolute narrative and more to do with what resonates, contrasted with the seemingly natural but arbitrary make up of divisions and specificities (well ordered systems of knowledge and representation) we find a more anarchic sentiment at play.

Of Ranciere’s notions of mediation and in-betweenness, Panagia writes that:

[his] theory of radical mediation requires that the terms of relation not be treated as transcendental and immobile but as elements or parts of a kinematic arrangement. The point is a classically sentimental one: it is not…

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Downhill Ski-ing on this Journey

I realise that my blog posts about my health are getting farther and farther apart. This is partly due to the honesty I invest in telling my truth, and also because it’s just plain harder to say, as it snowballs with negative facts. Fortunately, I don’t let those facts overcome me, in my everyday living.

So, last Saturday, well ten days ago, I woke at around four a.m and found I could barely breathe. My chest felt like a brick and my windpipe was whistling. So my carer called the NHS number we need to call, and before I could protest, an ambulance arrived with three paramedics. I qualified for three. (I don’t know why there were three. They were all very nice. One was obviously very senior in rank.) It all goes to make these visits, which are becoming more and more frequent, more interesting and good humoured.

I had to go through all the reasons why I now try very hard to stay out of the Emergency Room, which they accepted and after some discussion, they nebulised me. I found it very hard to inhale the stuff as my breathing was so irregular, and felt only slightly better afterwards. Then I was given another nebuliser. That was a surprise. But apparently they can keep giving them. I get the shakes as a side effect,  but I don’t care that much if I can breathe better. Then I was asked if I had ever been intubated because of my breathing? I felt alarmed. No. (And let’s not start now, I thought.) But this question was part of amore in depth discussion of my breathing problems and the cause, the treatment, and photos of the senior guy’s little girl.

A call was made to the On Call doctor, and a lengthy chat was had, most of which I missed because the other two paramedics kept asking me things. Then I was told the duty doctor would visit within two hours and prescribe antibiotics and that from then on I would need to have antibiotics in the house at all times. This will avoid waiting for scripts to be written and filled, especially at weekends.

The duty doctor did come and write a prescription. My carer got it filled and I started the course as soon as I could. Each day there was one dose of six tablets, plus three more single tablets spaced out over the twenty-four hour day. I soon experienced side effects,   like nausea, clamminess, and loss of appetite. At almost the end of the antibiotics, I spiked a temperature and was wheezing again, which made me a little nervous, but it passed. I slept a great deal and am now recovered.

That was actually the second ambulance that attended me that week. A few days before the events I’ve described, my carer called the non-emergency number because I’d had increasing pain in my chest. That one arrived with siren as well as lights. Now I understand that some of the pain I get in my chest and shoulder is referred pain from my diaphragm, which is a bit out of place and somewhat stressed. An ECG showed that my heart is somewhat stressed too, but that what it shows is normal for me. This makes me think that there’s almost nothing normal  about me. But I’m okay with that. I like to be outstanding.

As I write, I’m expecting a call from my own doctor. To chat about events and how to go forward. Nothing I haven’t mentioned here, though. I find all this palaver tedious. Why can’t it just be input into a computer and updated? I’m no expert on my health, I’m only expert at what seems to work for me and especially at what doesn’t.

I’m so looking forward to my daughter’s return from her holiday. I’ve missed her so much. I’m enjoying looking at Instagram and seeing all sorts of fascinating and beautiful photos and videos from around the world. It’s really brought me joy and wonder. So there are many ways to stay happy and cheerful. And with a dog like mine, laughter is never far away.

Four Questions with James Diaz @diaz_james

Poetic Insights

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James Diaz

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Q: Tell us about you, and your writing (themes, influences etc.)

A: There’s a wonderful scene in the film Wonder Boys where Rip Torn stands at the podium to address a university crowd full of literature students and the first words that he says are “I am a writer,” in a professorial, masterful way, to which Tobey Maguire’s character (incidentally named James) roars out in laughter. I kinda feel that way. It’s a little silly to say “I am a writer,” in a overly assured manner. I’m a broken thing who somehow finds that words are a miraculous binding agent, linguistic glue for my soul. I grew up in a violent, drug and abuse ridden home. I remember when I was 13 finding a Rolling Stone magazine in which these prisoners who were serving life sentences had turned to poetry as a way to cope with their impossible…

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Review: Rosary of Ghosts, Grant Tarbard

Grant Tarbard transports us to a dystopian world with his broken memories of a stroke, written in stunning poetry. If you buy any poetry this year, I thoroughly recommend that this is at the top your list.
The first poem, “Man Like You” will pull at your heart as he addresses a surgeon. ‘Torn head, all is Straw,/ a thunder machine/ bellows in my heart’. The pain of feeling being less than, pitied, is tangible.
This collection conveys Tarbard’s complete confusion and loss of physical wholeness using metaphor and imagery. You don’t need to understand his exact meaning to feel the power of his words. The picture is there in your mind, skilfully painted by the poet’s stunning use of words.
“Triptych” tells you about his three deaths without saying if they are literal.  ‘I press my cheek to my deaths, a slow dance… …The pain from old wounds/ache like wedding white.’ Never before have I read such poignant wording, completely without self-pity or self-consciousness, as in this pamphlet. In “Shallow Of The Room’’ , we are told …I have breathed as the dead breathe.

In “Lie Upon My Bed While I Die” …We are a den of Fagin’s thieves ‘stealing/ each little breathe that rises on our chests’ These images seem tangible, we are with Grant Tarbard in his extremity. He does not shy away from showing us. The title poem is quite cryptic, leaving us to ponder, but not escape.
Not a word is wasted in these poems. They beautifully depict the ugliness and despair we can feel about our bodies when they fail us, when we are stuck with needles and tubes. The smile of medical staff lends little, if any, comfort. It is as if Grant Tarbard viewed his body as alien to him. There are those of us who can relate. But sentimentality is there none.
Indigo Dreams Publishing ISBN978-1-910834-47-3

Light puts out darkness: An Interview with Chrissie Morris Brady

by  Anti- Heroin Chic

What becomes of us when our lives suddenly turn uncertain, stricken with debilitating, dire illness? How does the spirit learn to breathe, day to day? Friends, family, creativity, faith, they move us even when we cannot. Through them we survive and feel our lives not in vain. Taking up the warm hand of a loved one, writing a poem, the small and the ordinary, the large and over looming, we learn even while we die, and while we live, what else can we do but hold on for dear life? To make the time we have matter, as painful as each minute can sometimes be. As Chrissie Morris Brady faces the grim realities of her declining health, she does so with courage, authenticity and hope for others. “When light seems to be missing, I must ask God to show me where it is, what am I blocking it with?” asks Brady. “Light puts out darkness, and even in the night we have the moon and the stars. I am a pretty broken person so there are cracks. That’s how the light gets in.”

 

AHC: Could you tell us about your experiences living with the illness that you are facing and about the illness itself? How you have mustered courage and acceptance through such a harrowing ordeal? Where have you found your guiding light or inner thread all these years?

Chrissie: When the illness first appeared, I was very athletic. At first, I could not control my left hand so I began writing with my right hand. But it became noticeable and I would be asked if there was something I wanted or needed to talk about. I never knew what to say. Subconsciously, I wanted to express that I was bewildered by my left hand. It did not seem to be fully a part of me. I guess I tried to ignore it, bury it, as it was not every day that the symptoms were evident. Being ambidextrous, I would use my left hand on the days I had no symptoms. I guess my parents took me to our doctor fairly quickly. They were told I was attention seeking. Later, I was referred to a psychiatrist who asked me if I thought I’d lost my penis and similar questions. I recall giving one-word answers that I thought would please her. I thought she was insane.

My Dad would have been my strength at that time, and the continued friendships. Also reading, I read so many books, I just found such safety in words.

Little did we know I had contracted a lethal disease, that would almost take my life. I eventually became twisted up by excruciating muscle spams, having lost significant weight, with my left arm and leg flying around uncontrollably
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AHC: You wrote recently that you have no fear of death itself. That the fear that comes to you stems more from the flight or fight response. How did you reach this place of acceptance and not fearing death itself, it seems a terribly high internal mountain to have climbed in order to not fear the end?

Chrissie: I don’t think of myself as having climbed an internal mountain! I see myself now as Chrissie, the woman, a social campaigner and, maybe a poet. When I woke after my third brain surgery – I had four, conscious,- but during this one I had ‘snapped’, screaming with fear and isolation, and having had enough. More than enough. I remember lying in what I thought was some sort of anteroom to God’s judgment, and I thought, ‘I don’t know God’.

I initially set aside my thoughts that I didn’t know God. On finally doing rehab and speech therapy there was so much rejection in society for me, and no more athletics, that I couldn’t equate knowing God with such an arbitrary occurrence in my life. I had no difficulty believing in God – the beauty of nature declared him to me all the time. It was a few years later, that I started to ‘look for him’, and in all honesty, I fell in love with God. Having gone through such horrendous surgeries, having been in locked in syndrome, having faced so much rejection and discrimination, death seems like going home to a safe place.

AHC: You also go on to write about the small kindnesses and every day graces that you fill your life, the things and people you are grateful for, has this gratitude, in the face of pretty scary life-effects been a work in progress for you through out the years, taking stock, through the pain, of what and who makes this journey a little more bearable? What or who are you most grateful for today?

Chrissie: I started to work for an international charity, and, seeing so much unnecessary poverty and disease in less developed countries, I decided to be a thank you letter to other people. Not just those I served through my work, but my colleagues. I smiled a lot by nature, and it didn’t feel hard to do a little extra, an act of kindness, fulfilling a need if I could, instead of ‘hoping that works out’. I spent three years in California, working with people in recovery from drugs or alcohol. I was amazed by their response to love, rather than ‘these are the rules’. Of course, there is always a time to point out the rules, it’s just that love and compassion seem to go so much further. I did my best to follow the teaching of Jesus, and I find the simplicity of his message both challenging and rewarding.

It’s been the last three years, since I was told remission was over and that exposure to damp had taken away my lung capacity that I had to find more meaning in my life. I had written poetry in my teens had taken it up again when my daughter went to school full time. Poetry was a way to express my creativity, my political frustrations, my longing for an alternate life, and memories. Now I felt something of what had befallen me should be shared with people I might not know in the hope that something I’ve gone through, experienced or overcome might resonate and bring a sense of connection, relief or hope to others. My daughter makes this journey more bearable. She is delightful, talented, and I adore her. My goddaughter also brings me joy, and so many of my friends who are now scattered around the globe, a friend who is a vicar who turns up to do any number of strange tasks. I’m grateful to friends I’ve lost to cancer for their bravery, and though I miss them so much they have given me so much.

We tend to take so much for granted that it’s easy to lose wonder. I look at the sky at night and feel awe. I look at flowers, leaves, trees, animals and see so much beauty and imagination. I don’t know if I have heightened awareness because I’ve been so close to death, but I feel such appreciation.

I’m no Pollyanna, I feel no compunction to see good in everything. There are heart-wrenching events all the time. I do my best to highlight these and be part of change for the good.

I am so grateful to my Dad, John Morris, who taught me grace and a stoicism that is not ‘stiff upper lip’. My mother complained about everything, made a drama out of nothing and I had no peace in her presence. I would sit with Dad for hours, reading, or watching a western, walking in Purbeck or the forest, birdwatching. He died peacefully in my arms last March.

AHC: Has poetry been a coping or acceptance mechanism for you through this illness? Has creating and writing it out, felt empowering, like lifting a lid off a steaming pot, a release of hot air rushing into the open, allowing you to breath a little, even if only mentally, spiritually?

Chrissie: Poetry has been neither of those things most of the time. It certainly is breath, though. Poetry is so many things – a photo of a moment, a story, an outburst of anger. But deep down I’m just a person like any other person. It’s hard to know how much this disease has shaped me my personality. Poetry satisfies something within me for sure, the love of words, the expression of something elusive or a metaphor for the obvious. Certainly, it sustains me but so does my daughter.

AHC: What are the life lessons you are learning at this season in your life? You deal with and toil under uncertainties shadow, but feel and reflect so much of the sun and of life. Many of us forget to do that and we aren’t up against a thing as big as this, what advice do you offer others about appreciating and cultivating higher ground in our daily lives? What are the darker moments like, when that light is missing and you search, high and low, for reminders, remainders?

Chrissie: The biggest life lesson is gratitude. I am grateful that I can see, hear, taste, feel, laugh etc. Friendships are so important and connecting in a more distant way with poets, publishers, and other like-minded people. Letting people prove themselves before I open up to them – I have felt misused so many times. Forgiveness, I know I need it so many times, so who am I to withhold it?

My darker moments can be torment, when a symptom bothers me, or there’s a leak in the bathroom and I must deal with it. When light seems to be missing, I must ask God to show me where it is, what am I blocking it with? Light puts out darkness, and even in the night we have the moon and the stars. I am a pretty broken person so there are cracks. That’s how the light gets in

End of Year…

It’s a while since I wrote about my health… I do procrastinate because of the honesty it takes. I’m so used to hiding with smiles and the way I use words.

I lasted for about three and a half hours on Christmas Day. Otherwise known to some as my birthday. I watched Love Actually in the morning, in bed, with my daughter, after she had given me my birthday presents. Then I dressed and we had a great Christmas dinner with Michael, which he had cooked. I was full so quickly, and the few sips of cherry brandy had made me warm.

We started opening Christmas presents and chatting. After a while I felt so hot and so full that I couldn’t bear to be upright. Michael had to help me get into a summer nightshirt, and I lay on my bed. I felt defeated and tried to focus on what had been good; eating together, sharing gifts, chatting. The birthday wishes. The time alone with my daughter which is becoming less frequent these days. I will always cherish that and I am grateful, whatever else the day brought.

Now I need a day’s recovery after a hairdresser’s appointment, after going out for a meal or afternoon tea with a friend. If I am recovering from some exertion and I’m not fully recouped when a date with a friend has been arranged, I am sometimes not even well enough to have them visit me at home. This is especially hard for me. When we are limited to my home, my friends make the tea or coffee as I spill and find it painful and unsafe to handle boiling water.

My breathing seems to be in a new phase. I now don’t often feel as though my lungs are empty. I just breathe very shallowly. I don’t often lie on my back, I sleep on my side or stomach. But sleep is rare, and most often comes in the morning after a night of tossing and turning. This is difficult. It means I miss a lot of daylight, and messes my body clock even more. So I’ve arranged to speak to the doctor.  I want to find out if having oxygen will help me, if my lungs can absorb it, and what it is that causes me to feel such dreadful heat inside my body. If I could be free of that, my quality of life would improve a lot.

So here I am, my honesty is at full tilt, and this is the only place it is. I don’t think I could get through life if all this were at the fore of my consciousness. I don’t deceive myself, I just don’t think about it. I would go a bit crazy if I did, I think. Mind you, my self preservation does work. I take far fewer risks than ever before. I guard my body as well as I can.