After great weather it cooled…

The weather over the weekend was so good. I enjoyed it, although my symptoms are still in overdrive.

Martin woke me really early this morning. He had found the instructions that we needed . I felt so bewildered. He lengthened my day of discomfort by an hour at least. He said I wake him, but he has a tremendous ability to sleep well.

I finally got to speak with a doctor. I had to phone the surgery again. It was torture. I didn’t hear the advice I was given yesterday because of the distress I experienced by calling.

I am relieved that I had a long nap this afternoon. I would not be coping otherwise. Sleep is like gold to me. I need it to have relief from my body as well as to refresh my mind.

A Good Ordinary Day

Today has been a good, ordinary day. Although, I napped for almost three hours this morning until just after 1pm. That was magical, and I felt so much better afterwards.

Colin Meek is writing lies about me on Twitter. Let him. I, and many others, know the truth.

Both my lead and my boss were unavailable today. I need to get my NHS email account set up, and for some reason the gremlins are messing around.

Now, the working day is over and the evening is mine.

It could be better…

I am still using my daughter’s MacBook. The laptop I ordered came with an incomplete charger. I contacted the seller. They sent me another charger. It doesn’t fit. I want to send the whole lot back. They need to take up to 48 hours and will email me.

My consumer rights are being breached, but when you are on a very slow ‘chat’, it is less frustrating to just go with the flow.

Flow is one thing I don’t get with a MacBook. No moving effortlessly from one tab to another, copy and pasting, highlighting. Well, I can highlight on this. I just hate Apple. They use cheap Chinese labour, and I detest that. South Korea is at least a vague democracy, with human rights.

I missed a zoom meeting with SWASFT because of all this. I am so embarrassed but my boss is so sweet and laid back.

On Monday night I fell asleep within minutes of going to bed. I woke at 5.30 and napped in the middle of the day. Wednesday night I woke at 2am and fell asleep at 11am. I need to get a handle on my sleep. But my neurological disease needs controlling and that makes me very tired.

I’ve skipped three poetry zoom events. I guess I’m feeling my introversion at the moment. I am an introvert, but can extrovert fairly comfortably except in a group. It’s known as maturity. Being able to do both. In my teens I never said a word.

So now I need sleep and to rest.

So very tired…

I got up today and with two hours I was taking a nap. I got up for the postman, and napped again.

When I awakened I felt hot and lethargic but needed to pick up a prescription, fetch my clock from Jordi, and go to another shop.

After waiting ages in the airless chemist it was found that the prescription had not been sent. I felt peeved as I do not want to go back in a mask. I got my clock and then the shop I needed had closed before it’s closing time.

I got home feeling weary and forlorn.

The pain in my hip is ok with painkillers. My neck is still a bit sore.

I just attended a poetry zoom meeting. It was good. Not my usual crowd. I’m glad I made the effort.

The power of a nap…

Today, around noon, I shut down my phone and got into bed. I napped for about two hours. I didn’t realise I was tired, but looking back at my week I’ve woken early most mornings and the pain in my thigh has occurred twice.

Pain is tiring, and so is waking at 5.30 am. At some point we need to replenish. I’m fortunate that because I work from home, I can take a nap when I choose.

I enjoy my life, working in this way. I’m having lunch with a friend tomorrow. The weather here is very sunny, and very cold. When the sun goes in, the temperature drops a great deal. I shall enjoy the occasion, on the quay, by the harbour where I live.

Still very tired…

• 

September is here so I feel a sadness. The warm long evenings have gone and the days are cooler.

I’m still feeling tired and there’s no reason for it. I’m eating healthily, although perhaps not quite as much as I should. I’m sleeping really well. I get plenty of fresh air.

The windchimes next door still cause me so much pain. That’s all I can think of that would cause this weariness. I have phoned the local paper.

I disturbed a monarch butterfly in my garden and then it lit on the ground in front of me. They are so beautiful. There have been no birds in my garden since my neighbour cut back his vines. A dead bird was put in my porch, which really upset me.

I’ve been to poetry readings, which are always good. Some people from Salisbury were there, which added more into the mix. I shall be reading there later this month.

I am going to have a nap, which is very unusual for me. It’s the only way I’m going to get through today.

Instagram: @purbeckpoet