Today has been a good, ordinary day. Although, I napped for almost three hours this morning until just after 1pm. That was magical, and I felt so much better afterwards.
Colin Meek is writing lies about me on Twitter. Let him. I, and many others, know the truth.
Both my lead and my boss were unavailable today. I need to get my NHS email account set up, and for some reason the gremlins are messing around.
Now, the working day is over and the evening is mine.
Very reluctantly, but because it’s the right thing to do. I knew it would make me unwell, but I didn’t bargain for how unwell. I became very feverish, and every bone in my body hurt. I didn’t bother to take my temperature as I was far too unwell. I was very hot indeed.
I also had trembling and muscle spasms. This is what I had feared most – the effect on my nervous system.
56 hours later, my temperature is down, most of the aching and bone pain is gone, but I have nerve pain and earlier I had sharp pain in my left shoulder.
I am fully aware of what pain in my left shoulder might indicate, but I’ve had it on and off for a long time. I frequently get pain in my chest. I know my heart is affected but not sure how. I am not ready to see a doctor about it yet. I have other concerns.
Most of us here are staying at home, if we can’t go to work. I have become aware of people jaunting around the country to hear/see concerts. I am enraged because two weeks ago our fourth paramedic died of Covid. 41 years old. Doing his job.
The NHS is so stretched. People who go for jaunts risk having accidents. That’s why they’re asked to stay local. This is a pandemic. It’s a virus with which humans have no immunity. I give up on people being decent and doing the right thing.
It’s a bright sunny day today but I shall probably fall asleep. In rugby, the Triple Crown will be fought for. I hope I get to see it.
One of my poems is published in here-
https://lockedwritedown.squarespace.com/book/locked-write-down-book
It is an anthology of poems about lockdown. Profits are going to the NHS and Black Lives Matter.
With thanks to Robyn Hislop
In my last post I forgot to mention my hip, even though it was in the title.
It had been giving way for a few days. Not painful, just unreliable. Today it has been fine. My femoral nerve seems better too.
I am still writing, despite all the enmity that came my way for standing up for my principals. My stats are good.
We just had our 8pm clap for NHS staff. It’s such a unifying thing. And afterwards there is always my thank you email. It is so uplifting.
It’s so sad that we have had to rely on people raising money to fund the NHS. Even though it’s funded by our income tax the government has not funded it properly for 11 years.
We have rain. And the temperature has dropped. We need rain. I did not need a drop in temperature though. All I can do is make the best of it.
My garden is full colour. My chosen colours. The bees are busy.
I had hoped to write a post about something that might bring understanding on issues that plague humankind. Instead I am just writing part of my journey with chronic disease.
I have been dealing with the pain in my shoulder, and have seen some improvement. I’ve used breathing techniques to relax, and small amounts of alcohol – a glass of wine will send me into a deep sleep, which is really great and medicinal.
It seems I may have bruised a bone in my pelvis when I had that awful fall on06 11 19. The bruise was bad, but there is still tenderness and some pain in my left leg.
Last week, one day, my blog was most read in Japan. I found this surprising. My blog has been read in every country in the world, apart from a handful of countries in Africa. I find this very humbling. I hope those who read it find inspiration and hope.
I started this blog without even thinking others would read it. In all honesty, I think it’s only been this year that I started to engage with followers on WordPress. Sometimes a friend will let on that they have read something, but I would rather not know, as I want to write freely.
Last week, someone hacked the facebook account of a friend of mine and sent me a friend request. I blocked that hacker and told my friend. I don’t understand why I get that intrusion now. When I was much more engaged in human rights, it was almost normal to be ‘spied’ on, or brand new accounts asking my friends questions about me. Friends who freely gave info to someone they’d never heard of became unfriended by me on facebook. I’m still in touch with a few, but really, who gives info about a friend to a stranger? I don’t.
All sorts of tactics have been used to try and intimidate me, or find out information about me. That’s ok. But when my daughter was brought into it, that was quite another. I am a tigress when it comes to my daughter.
I’ve stepped back in the last 18 months as it took a toll on my mental health. Politics is so slow. And so many lies are told and believed. Some governments place no value on human life. Some – most goverments see refugees as less than human.
We have an election here this week. I shall vote Labour as it will save our National Health Service. It is up for sale with the Conservatives, and Trump’s proclamation that he isn’t interested in our NHS was word play. He hates the NHS because Republicans see it as socialism. We pay for it in taxes and it is free at the point of need. The Tories have planned to end this and make it a for profit scheme.
If you have the right to vote here in the UK, please vote Labour for the sake of the NHS. I have never before advocated for the Labour party. I don’t like Jeremy Corbin, I don’t like a lot of things, but Labour is the lesser of the two evils.
Writer and psychologist. My health, a journey with two life shortening diseases 
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